5(?)/10. Not sure how to give 'exhausted' a rating
Had three follow-up visits to the hospital this week and I'm beat. From the lab test results I learned that I am not yet out of the water—although at lower levels than before, protein in urine is a sign that my kidneys are still inflamed. The road to recovery will be long, and it will most likely not be an easy one.
For my next appointment, I will be seeing a social services worker next Wednesday to try to get coverage for one of my prescription drugs—Myfortic, a rather expensive immunosuppressant—which, for some reason, is not under the list of subsidised drugs here.
Today I'm on a 6
I'm on recovery and feel good thanks to TRT.
Life has situation and challenges that I have not been handling successfully.
In my work I had to get mad and talk loud so my team leader pays attention, after that they understood there was a mistake and fixed it. But they told me I had not needed to get mad, but its been 7 days I've been struggling with that. They say I should have talked, I did during 7 days... But perhaps handling better is needed.
And life, the woman, finding and deciding on a partner is not easy.
I need to believe I can provide for myself a good life. <= This is something urgent!!
I need to believe I can, I'm not longer depressed, I have to believe I can make it
It was 5, maybe 6 for most of the day, kinda neutral, and then a seizure hit.
I cannot explain how bad a seizure feels, I tried for 18 years now. No dice.
So do other epileptics, funnily enough - they're just at loss for words, so neuros can't understand us. Not truly.
6 I feel very detached from the world. The loneliness is really painful. But I feel there’s nothing else I can do. It feels like a slow torture to be stuck at my house, but takes too much energy to go and see anyone.