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Rustysoupcan

Rustysoupcan

I'm sensitive
Joined
May 2, 2020
Messages
157
I'm thinking of doing ECT or TMS because nothing else is working. Just wondering what your experiences are because I'm kinda scared about it.
 
Meretlein

Meretlein

Moderator
Joined
Feb 15, 2019
Messages
1,061
neitherherenorthere

neitherherenorthere

Student
Joined
Apr 22, 2020
Messages
169
Meretlein's comment is what I've read and heard anecdotally from the few people I know who've done ECT as well. TMS is not as effective as the clinics like to tell you (or at least, their definition of effectiveness is not what you'd assume it to be), so don't expect any miracles, but it's worth a shot. There are many people who it's helped at least somewhat, and compared to ECT long-term side effects seem to be quite rare. If you do choose ECT, try unilateral rather than bilateral, as the latter is known to cause more memory issues. Not that I'm a medical professional or anything. This is all just stuff I've gleaned over the years. If you have a psychiatrist you should definitely talk to them about it. Generally though I think TMS may be a better choice to go with before opting for ECT.
 
D

DeathWish89

New Member
Joined
Mar 19, 2021
Messages
4
The psychiatrist I see actually does the ECT so he could be considered an expert. When he met with me in the psych ward a few weeks ago I had pretty much made up my mind about going through with ECT but he (and I thought this was interesting considering HE'S THE ONE WHO DOES ECT ON HIS PATIENTS) actually dissuaded me from doing it because in his experience, 1 out of 3 people have long lasting cognitive deficits, like they have issues with learning new things. He thought that if it happened it to me, it would cause me more distress in the long run, considering I'd like to go to medical school (if I ever get healthy enough, things aren't looking good.) He instead recommended intranasal ketamine because there really are no downsides to doing it.
He also does TMS and said that there is like a 50% success rate with that method.
 
elfgyoza

elfgyoza

Cursed
Joined
Aug 5, 2019
Messages
328
If you pick between the two then definitely TMS over ECT. I haven't had either but I saw first hand what ECT did to someone on my psych ward. She was like a zombie, every Friday you knew she'd been for ECT because she slept all day, forgot everyone's names, kept asking where she was. One week she slept through till Sunday and didn't have any idea what day it was. Even the nurses refused to take her one time, they knew how horrible it was
 
C

CharlieBrown

Member
Joined
Aug 22, 2020
Messages
17
I did ECT. I concur with much of what has been posted in this thread (try TMS first; if you do ECT make sure to begin with unilateral). I don’t know how badly you are suffering. I suppose that if ECT has been used for so long, that it must help some, so I would never want to talk someone out of trying something that can potentially save his / her life even though it didn’t help me.
 
N

noname223

Enlightened
Joined
Aug 18, 2020
Messages
1,051
I considered to try ECT. In Germany they barely use this method. I knew one severly ill person who has gotten it. He said it helped. But i am not an expert. I've read other stuff than in this thread but it is superficial knowledge.
 
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RedHarlequin

RedHarlequin

Specialist
Joined
Jul 8, 2018
Messages
372
I tried ECT. I had some memory problems during the treatment and a couple of months after it, but they are now gone. It didn’t help me, but it is effective in around 70% of patients who have tried medication without success. I am also glad I did it so I don’t have to wonder if I have missed a recovery option.
I haven’t tried TMS, the doctor basically said if ECT didn’t work TMS won’t. It sounds like bs but oh well.
 
T

Thiopentone31

Member
Joined
Mar 30, 2021
Messages
57
No side effect at all anyway
 
N

NeuroDamaged3

Member
Joined
Apr 4, 2021
Messages
16
Major side effects for me. It was like someone removed a little bit of my brain. All my issues worsened permanently while all it did was made me a 'happy zombie' of sorts, small increase in happiness that was very brief.

I would recommend alot of other solutions for ECT. I did ECT as a method to CTB since I was afraid it'd make me a drooling mess and although it didn't go that far, it definitely wrecked me.
 
M

MutatedFlower

Member
Joined
Nov 24, 2020
Messages
22
I've done ECT and it does cause damage to short-term memory, which is one of the most important things for cognition. It does help a little. I no longer think about my life, but considering that whats makes humans human, being able to think. I don't recommend it, especially if you have any type of self-awareness. You'll still have that after the treatment.
 
Last edited:
L

LittleJem

Enlightened
Joined
Jul 3, 2019
Messages
1,295
I paid for TMS, it's not cheap - 7K in UK pounds. I was so ill and suicidal I decided it was worth trying, as their website hyped it up and their intake person hyped it up.

The company I used, Smart TMS, keeps no data on their patients post-TMS (i.e. even for patients for whom it works, what is the relapse rate, how long till relapse?). On their website they site 70% efficacy for TRD, BUT they only quote one or two research papers and do not state how long the treatment lasts for....You can have maintenance treatments, but there isn't research or data as to how much maintenance is required.

Even ECT when it works only works for maybe 6 months or a bit longer, nothing cures it long term. I didn't know any of this before I signed up and spent the money.

So out of 30 days of TMS (30 treatments anyway, I had two on the same day sometimes), I had 8 days of relief total. I remember the day it worked for me, about 10 days into treatment, before and after the TMS I was like a different person. before it, depressed, could barely speak, suicidal. After it, conversational and much happier. For those 4 days when I felt better, I wanted to marry the TMS machine. Seriously.

Then I had PMT and my mood crashed back to suicidal again. This was halfway through the sessions. I didn't know whether to pay for the next batch (where SmartTMS hike up the price). I took the next 15 and had a few days of relief. Nothing lasting.

Nevertheless, it was kind of worth it for me as the days of feeling better gave me the strength to fight bullying in my workplace and also gave me some hope that my brain could function differently. I was still horribly ill and suicidal with depression...UNTIL:

I feel better now thanks to microdosing Ketamine. 30mg every other day. That is my top tip. Snort it for better bioavailability. After 20 years of waking up wanting to die, I don't wake up now with suicidal thoughts. I do also use other stuff around it. Shrooms are now more helpful for me, LSD is still helpful for me (I count myself lucky that these substances are helpful for me). Weed is good for my agitation. Modafinil is instant mood uplift. I cycle all of them.

If you haven't tried Ketamine, I would recommend Ketamine first. The protocol of 30mg every other day is a good one, I found it on Reddit (finally) after much research. If you do it legally it is muchos expensive, so black market is much cheaper. The b**stards have made a nasal spray for treatment-resistant depression that costs £10,000 so the NHS have decided not to offer it. But on the street, it is £30 a gram. It is one of the most essential medications in the world, it is a battlefield anaesthetic and they even use it on babies. So all the lies they tell about 'party-drug' Ketamine is also a cover-up for not sharing this common and essential medicine with those whose lives it can save. It is saving my life at the moment.
 
MiseryWithoutCompany

MiseryWithoutCompany

Failure and Loser
Joined
Oct 1, 2020
Messages
25
I had ECT done a few years ago. I can't recall how many sessions but I think it was 3 years ago anyway. I'm still scatterbrained and my ability to solve puzzles, count above 12, or spell has tanked significantly. Please be careful if you choose this route.
 
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kappa

kappa

Student
Joined
Apr 2, 2019
Messages
185
LittleJem said:
I paid for TMS, it's not cheap - 7K in UK pounds. I was so ill and suicidal I decided it was worth trying, as their website hyped it up and their intake person hyped it up.

The company I used, Smart TMS, keeps no data on their patients post-TMS (i.e. even for patients for whom it works, what is the relapse rate, how long till relapse?). On their website they site 70% efficacy for TRD, BUT they only quote one or two research papers and do not state how long the treatment lasts for....You can have maintenance treatments, but there isn't research or data as to how much maintenance is required.

Even ECT when it works only works for maybe 6 months or a bit longer, nothing cures it long term. I didn't know any of this before I signed up and spent the money.

So out of 30 days of TMS (30 treatments anyway, I had two on the same day sometimes), I had 8 days of relief total. I remember the day it worked for me, about 10 days into treatment, before and after the TMS I was like a different person. before it, depressed, could barely speak, suicidal. After it, conversational and much happier. For those 4 days when I felt better, I wanted to marry the TMS machine. Seriously.

Then I had PMT and my mood crashed back to suicidal again. This was halfway through the sessions. I didn't know whether to pay for the next batch (where SmartTMS hike up the price). I took the next 15 and had a few days of relief. Nothing lasting.

Nevertheless, it was kind of worth it for me as the days of feeling better gave me the strength to fight bullying in my workplace and also gave me some hope that my brain could function differently. I was still horribly ill and suicidal with depression...UNTIL:

I feel better now thanks to microdosing Ketamine. 30mg every other day. That is my top tip. Snort it for better bioavailability. After 20 years of waking up wanting to die, I don't wake up now with suicidal thoughts. I do also use other stuff around it. Shrooms are now more helpful for me, LSD is still helpful for me (I count myself lucky that these substances are helpful for me). Weed is good for my agitation. Modafinil is instant mood uplift. I cycle all of them.

If you haven't tried Ketamine, I would recommend Ketamine first. The protocol of 30mg every other day is a good one, I found it on Reddit (finally) after much research. If you do it legally it is muchos expensive, so black market is much cheaper. The b**stards have made a nasal spray for treatment-resistant depression that costs £10,000 so the NHS have decided not to offer it. But on the street, it is £30 a gram. It is one of the most essential medications in the world, it is a battlefield anaesthetic and they even use it on babies. So all the lies they tell about 'party-drug' Ketamine is also a cover-up for not sharing this common and essential medicine with those whose lives it can save. It is saving my life at the moment.
This is really helpful. My therapist recommend trying TMS since medications do not work for me.

The treatments would be 5 days a week, at least 36 sessions. I don’t understand how people can work a job and get this treatment at the same time.

Kinda though it was my last option. But hearing it doesn’t last is helpful.

Mushrooms are decriminalized where I am at, loosely thinking of trying to grow some for microdosing.

I looked into TMS it kind of freaks me out tbh.
 
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L

LittleJem

Enlightened
Joined
Jul 3, 2019
Messages
1,295
kappa said:
This is really helpful. My therapist recommend trying TMS since medications do not work for me.

The treatments would be 5 days a week, at least 36 sessions. I don’t understand how people can work a job and get this treatment at the same time.

Kinda though it was my last option. But hearing it doesn’t last is helpful.

Mushrooms are decriminalized where I am at, loosely thinking of trying to grow some for microdosing.

I looked into TMS it kind of freaks me out tbh.
 

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