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nasblue

Member
Jul 14, 2018
92
Browsing this forum, I read a lot of posts from chronically/severely ill people. I think it'd be nice to have a thread about our problems, how doctors fucked us up and how we cope. This might also help by putting our own problems into perspective.

Me, I'm struggling with chronic pain after a hernia surgery with mesh. On top of the pain, there's the constant worry of the mesh causing complications and its experimental use. A young man like me should get mesh free treatment, but greedy surgeons sponsored by mesh producers would rather use the easy and profitable mesh method. Right now, all I want is to get rid of the mesh, even if I still have chronic pain after that. But I haven't found any doctors willing to help with that.

Anyway, what are your problems? I'm sure there's a lot of worse shit out there.
 
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Deleted member 1465

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Jul 31, 2018
6,925
Sorry to hear that.

I appear to have many of the symptoms of type 2 diabetes, but my blood tests keep coming back fine. Doesn't stop the symptoms progressing though! My GP just thinks I'm nuts as does the psych I've ended up with, but neither of them will listen to me when I say I have actual clinically measurable symptoms (rather than it being psychcosomatic).

It took me a year, but I've managed to bully my GP into referring me to a specialist. Not before my life has collapsed though, lost my job, my car and now I'm practically housebound. I live alone, and as my health deteriorates, I'm becoming increasingly helpless.

I've lived with chronic pain though I cannot know how your situation affects you. All I can say, is if you have some support from family, friends etc. then keep going if you can. If there is any chance your situation will get better then it may be worth sticking it out.
 
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Saraphin

Member
Jul 28, 2018
12
Browsing this forum, I read a lot of posts from chronically/severely ill people. I think it'd be nice to have a thread about our problems, how doctors fucked us up and how we cope. This might also help by putting our own problems into perspective.

Me, I'm struggling with chronic pain after a hernia surgery with mesh. On top of the pain, there's the constant worry of the mesh causing complications and its experimental use. A young man like me should get mesh free treatment, but greedy surgeons sponsored by mesh producers would rather use the easy and profitable mesh method. Right now, all I want is to get rid of the mesh, even if I still have chronic pain after that. But I haven't found any doctors willing to help with that.

Anyway, what are your problems? I'm sure there's a lot of worse shit out there.
So sorry for all your pain it is horrible what modern medicine can do to you I have also found this out the hard way three years ago I was having some back pain and the doctor suggested an epidural steroid injection and that was the start of my nightmare I got a spinal CSF leak from the injection they know that this can happen with any epidural spinal tap or spinal anesthesia but they said everybody will heal up but this is not the case there are thousands of people just like me suffering from a chronic spinal leak I have had multiple procedures and most recently a spinal surgery to try to fix it but nothing has worked I am bedridden and suffer terrible head pain headaches dizziness nausea and vertigo constant feeling like I’m moving on a boat and bunch of other neurological problems I really only get up to go to the bathroom I shower once a week sometimes I even eat laying down because it is too hard to set up before this condition I was a super fit very healthy 47-year-old I worked out every day and was an avid road cyclist this has ruined my life and I can’t I believe the doctors are allowed to do this I just can’t believe it there’s not much more they can do for me so I am pretty much out of Hope and I just want out of this life and the suffering I can’t live this way every day is agony and the only relief I get is by asleep I just need to try to find the best way to die to make sure I don’t mess it up and I actually die I have told my family that I don’t want to keep living like this but they disagree with me they think that I will get better they think I need to keep trying more procedures but I am just done I have a lot of anger that this happened to me but I know that things like this happen other people to it’s just you’re either lucky in life are unlucky I guess but it’s not fair One thing I say to anyone is to stay away from all the doctors because they have the potential to ruin your life And then you’re the one who has to suffer in it and you can’t even ask them to kill you there’s the injustice
 
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nasblue

Member
Jul 14, 2018
92
So sorry for all your pain it is horrible what modern medicine can do to you I have also found this out the hard way three years ago I was having some back pain and the doctor suggested an epidural steroid injection and that was the start of my nightmare I got a spinal CSF leak from the injection they know that this can happen with any epidural spinal tap or spinal anesthesia but they said everybody will heal up but this is not the case there are thousands of people just like me suffering from a chronic spinal leak I have had multiple procedures and most recently a spinal surgery to try to fix it but nothing has worked I am bedridden and suffer terrible head pain headaches dizziness nausea and vertigo constant feeling like I’m moving on a boat and bunch of other neurological problems I really only get up to go to the bathroom I shower once a week sometimes I even eat laying down because it is too hard to set up before this condition I was a super fit very healthy 47-year-old I worked out every day and was an avid road cyclist this has ruined my life and I can’t I believe the doctors are allowed to do this I just can’t believe it there’s not much more they can do for me so I am pretty much out of Hope and I just want out of this life and the suffering I can’t live this way every day is agony and the only relief I get is by asleep I just need to try to find the best way to die to make sure I don’t mess it up and I actually die I have told my family that I don’t want to keep living like this but they disagree with me they think that I will get better they think I need to keep trying more procedures but I am just done I have a lot of anger that this happened to me but I know that things like this happen other people to it’s just you’re either lucky in life are unlucky I guess but it’s not fair One thing I say to anyone is to stay away from all the doctors because they have the potential to ruin your life And then you’re the one who has to suffer in it and you can’t even ask them to kill you there’s the injustice
That definitely sounds worse than my situation, I can at least move around (with pain). Have you considered getting in touch with Dignitas or a similar organisation? I'm pretty sure in your case they'd help.
 
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Saraphin

Member
Jul 28, 2018
12
That definitely sounds worse than my situation, I can at least move around (with pain). Have you considered getting in touch with Dignitas or a similar organisation? I'm pretty sure in your case they'd help.
I have thought of it but they are so expensive I also reached out to the final exit network and they said they could possibly help I would have to send all my medical records have some interviews and get approved (which they say is harder because I’m not terminally ill) but the main hurdle there was your family or husband has to be supportive of the decision they said they could not do it without also interviewing my husband And I know he would not agree to this so I feel stuck it is a terrible terrible trapped feeling
 
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itsallover

Arcanist
Jun 29, 2018
478
Browsing this forum, I read a lot of posts from chronically/severely ill people. I think it'd be nice to have a thread about our problems, how doctors fucked us up and how we cope. This might also help by putting our own problems into perspective.

Me, I'm struggling with chronic pain after a hernia surgery with mesh. On top of the pain, there's the constant worry of the mesh causing complications and its experimental use. A young man like me should get mesh free treatment, but greedy surgeons sponsored by mesh producers would rather use the easy and profitable mesh method. Right now, all I want is to get rid of the mesh, even if I still have chronic pain after that. But I haven't found any doctors willing to help with that.

Anyway, what are your problems? I'm sure there's a lot of worse shit out there.
That would be a good idea. Everyday I struggle in between thinking things will somehow improve and others thinking I am completely screwed. You get more discouraged as time passes by and each new procedure fails. Personally I want to go out with someone in a similar situation as me. I can handle the depression and and anxiety of life plus all of its ugliness but I can't stand chronic pain and discomfort. I am pissed off that this happened to me and would like revenge, but at the end of the day I just don't want to suffer anymore. I had my whole life ahead of me and it was ruined by idiots. I fought it mightily for as long as I could, but almost all the hope is gone and I can't be housebound anymore on the verge of losing my mind.
 
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